Tuberous Sclerosis Complex Clinic Receives Official Designation

The Tuberous Sclerosis Complex (TSC) Clinic at Le Bonheur Children’s Neuroscience Institute has received official clinic designation from the Tuberous Sclerosis Alliance, a national organization dedicated to increasing awareness about TSC. The alliance grants clinic designation to programs that meet criteria related to the number of TSC patients seen, the types of problems encountered and the ability to provide educational information and multi-disciplinary care.

This designation will allow Le Bonheur’s Neuroscience Institute to better care for pediatric patients who are affected by the genetic disorder, which causes tumor growth in organs throughout the body.

Through the alliance, the Neuroscience Institute can provide families with information to help them understand TSC, which they can then share with their child’s school and teachers. Additionally, the alliance hosts educational programs for families and ensure all are receiving the best care possible.

“The clinic reflects Le Bonheur's commitment to providing outstanding, state-of-the-art therapy to this population,” said James Wheless, MD, director of Le Bonheur Children’s Neuroscience Institute. “Families can be assured they will receive the best care possible for TSC. We will also continue to advance new research that will improve the care of these patients.”

Wheless, along with Neurophysiology Fellow Katherine Van Poppel, MD, have been appointed as the TSC Clinic’s medical directors. Wheless will serve on the national Professional Advisory Board.